We decided finally what to wish for, for Emily. We were thinking of a trip, a vacation, a cruise. In the end, we decided that although she would like any of those things, her house and her bedroom are her favorite places of all.
She was denied a Sleep Safe Bed through her insurance, so we are asking for that. They are going to propose that we get a new bed, an EmFit epilepsy monitor for the bed, a mounted TV with DVD player, and all new storage. Her room is so full of medical equipment and supplies that it is a disaster and has rubbermaid containers everywhere. So the plan is for them to completely redo her room.
She will LOVE it. She loves snuggling in her bed and watching DVD's. Without her down time every day she is extremely grumpy.
They are going to see if they can throw in an Ipad as an extra! :)
Yay!! I'm so excited for her!!
ReplyDeletethat is so great and what a PERFECT idea!!! I'm so happy that MAW is there for children like Emily!
ReplyDeleteI peeked at your last post about her birthday. the pictures are wonderful and everyone looks like they had such a fun time!
What a great thing for them to do. I can't wait to see all of the pics of the before and after.
ReplyDeletePerfect.All of it.Absolutely perfect.
ReplyDeleteSo excited for you guys.For her.Zoey's Wish Day was all we hoped it would be and be are certain, that Emily's wish will be the same!
First of all, you were denied a sleep safe? What the h#@l!
ReplyDeleteThat will be a fantastic wish! I bet it will make her room much more accessible. I was just thinking that we will never have room for a sleep safe in Jax room. Way too much rubbermaid and equipment too!
PERFECT!!!!!!!!!
ReplyDeleteSounds like a fantastic idea!
ReplyDeleteHow perfect! What a great idea! I'm excited for you guys!
ReplyDeleteI am so glad that you are getting your wish. I love her sleep safe bed. It saves my back as far as bending over. Also we can tilt the head up and the knee up so she cacoons right in the lil valley. I have been thinking of a handicap accessible bathroom and also an aquarium. Her fav thing at the hospital is to llook at the fish. They are big enough for her to see and move just at the right slow pace for her to follow. Please take pictures when it gets done. Thank you for updating us.
ReplyDeletethat sounds like such a great idea...can't wait to see it all done up!
ReplyDeleteWhat a perfect wish!!! Can't wait to see the "after" pictures!
ReplyDeleteYAY! It's about time. :) I'm so glad that she's finally getting her wish. And what a HUGE help that will be.
ReplyDeleteI think that is the BEST idea! And unlike a trip it will last for ever!
ReplyDeleteCan't wait for the photos!
Oh I cant wait to see her wish completed....
ReplyDeleteWow. This all sounds so wonderful. I can't imagine a more deserving girl for all those things. I'm interested in hearing about the EmFit monitor. We have been sleeping with Sophie for YEARS --
ReplyDeleteWOW! Sounds great! I bet you guys can't wait! Sounds like you made a wise choice! Hugs!
ReplyDeleteJust catching up! That's pretty awesome that she's getting a room makeover and a new bed!
ReplyDeleteYou seem better at keeping up than I am... sorry to be late to respond, but this bedroom makeover sounds FABulous! I'll look forward to photos of the finished project!
ReplyDeleteHappy Halloween...
I've heard those beds are SO great! This sounds like a great wish, actually!
ReplyDelete