tag:blogger.com,1999:blog-7946092121614357964.post7061209154394296428..comments2023-10-28T02:57:57.520-07:00Comments on What Used To Be Perfect But Now Is Broken: Topamax question - help!ANewKindOfPerfecthttp://www.blogger.com/profile/11978293330074662766noreply@blogger.comBlogger11125tag:blogger.com,1999:blog-7946092121614357964.post-19850454415975517842010-05-23T11:58:12.236-07:002010-05-23T11:58:12.236-07:00I can't believe you thought to post on this - ...I can't believe you thought to post on this - I had the same question, and we're making ourselves crazy crushing and trying to pour the tiny bit of powder into a syringe without losing any. One doctor told us the same thing about sprinkles clogging the g-tube, but since the others didn't, and actually said she'd be getting sprinkles, I was inclined to get the sprinkles. I conniehttps://www.blogger.com/profile/08675708151247378703noreply@blogger.comtag:blogger.com,1999:blog-7946092121614357964.post-40627007529255616042010-05-22T22:14:00.933-07:002010-05-22T22:14:00.933-07:00Oh... and... she's been on it for four years.....Oh... and... she's been on it for four years... no issues/side effects, etc. Hope that is encouraging :)Kristihttps://www.blogger.com/profile/17042677454137850148noreply@blogger.comtag:blogger.com,1999:blog-7946092121614357964.post-51908587204520727282010-05-22T22:11:51.210-07:002010-05-22T22:11:51.210-07:00The sprinkles are terrible for the G-tube, as you ...The sprinkles are terrible for the G-tube, as you know from all the other comments.<br /><br />We had suspension initially because Gracie's dose was so small it would have been impossible to get it accurate by cutting/crushing. Now she takes half a tablet twice a day. We crush. It also dissolves beautifully. Easy as pie and way less hassle than having to go to another pharmacy for a Kristihttps://www.blogger.com/profile/17042677454137850148noreply@blogger.comtag:blogger.com,1999:blog-7946092121614357964.post-19739676886771632142010-05-22T08:04:38.483-07:002010-05-22T08:04:38.483-07:00If you're ever in that situation again, and th...If you're ever in that situation again, and the med can't be compounded, you can always mix it in a teaspoon or two of applesauce, then add a small amount of water and draw the mixture up into a syringe. The applesauce gelatin creates a suspension. We do it with our son's drugs all the time.jeneva22https://www.blogger.com/profile/14796890614666454443noreply@blogger.comtag:blogger.com,1999:blog-7946092121614357964.post-37941962292399047982010-05-21T17:45:30.802-07:002010-05-21T17:45:30.802-07:00I'm glad you got your answer...my daughter (al...I'm glad you got your answer...my daughter (also micocephalic -- found you on FCM) uses Topamax for her seizures. Adding that is what finally helped control them. Good luck. Your daughter is beautiful.Jennyhttps://www.blogger.com/profile/13101399559614616079noreply@blogger.comtag:blogger.com,1999:blog-7946092121614357964.post-83689672220079617652010-05-21T13:03:49.189-07:002010-05-21T13:03:49.189-07:00My fingers are crossed! In the meantime, good news...My fingers are crossed! In the meantime, good news! You are the winner of my book giveaway! Just email me at elsophie at gmail dot com with your address and I'll pop it in the mail to you next week!<br /><br />I hope your little munchkin gets relief soon!Elizabethhttps://www.blogger.com/profile/03313726816776097840noreply@blogger.comtag:blogger.com,1999:blog-7946092121614357964.post-30579964810329183022010-05-21T05:47:51.013-07:002010-05-21T05:47:51.013-07:00Glad you were able to find a liquid. We used to c...Glad you were able to find a liquid. We used to crush Danny's Topamax. He is no longer on it as it gave him kidney stones, sigh. I've heard it can make people seem like they are going crazy and change moods drastically. So just what her and she how she does, I wasn't able to detect anything in Danny but I've heard from others it not so nice.Lori Oserohttps://www.blogger.com/profile/06326635505124702294noreply@blogger.comtag:blogger.com,1999:blog-7946092121614357964.post-44651663041583544502010-05-20T09:26:12.557-07:002010-05-20T09:26:12.557-07:00we used topomax for a short time and just added wa...we used topomax for a short time and just added water and let it dissolve. Junior was on the keto diet at the time he started it and when we switched neuros they totally freaked and had us stop it immediately. Said that putting a kid on it who is on the diet is a disaster waiting to happen since it can cause kidney stones. <br />Good luck, I know it works great for some.Juniorhttps://www.blogger.com/profile/03719754876592849914noreply@blogger.comtag:blogger.com,1999:blog-7946092121614357964.post-42469057851800726892010-05-20T07:59:21.041-07:002010-05-20T07:59:21.041-07:00It would be great to get it in a liquid. We have t...It would be great to get it in a liquid. We have to have the pill form, because he can't have glucose. DO NOT put the sprinkles through her g-tube, I learned that the wrong way. Our pill crushes just fine for us!Laceyhttps://www.blogger.com/profile/03321275110857561824noreply@blogger.comtag:blogger.com,1999:blog-7946092121614357964.post-39431208842770340272010-05-20T06:57:20.961-07:002010-05-20T06:57:20.961-07:00Gavin was on this for awhile and it does dissolve ...Gavin was on this for awhile and it does dissolve in water. Hope the med does wonders for Peanut! Love, Hugs and Prayers!!!The VW'shttps://www.blogger.com/profile/05116325494368190699noreply@blogger.comtag:blogger.com,1999:blog-7946092121614357964.post-14249125302963584262010-05-20T05:31:23.642-07:002010-05-20T05:31:23.642-07:00Yes it dissolves. That's what we have done fo...Yes it dissolves. That's what we have done for two + years. Drop it in the syringe, put the plunger in and pull up the water. <br /><br />tada!<br /><br />GwenIvey's Momhttps://www.blogger.com/profile/09193400877174754085noreply@blogger.com